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ADD and ADHD
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Autistic Spectrum
(19)
Blindness and Visual Impairment
(7)
Blood Disorders
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Cancer
(11)
Carers
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Communication Disorders
(4)
Deafness and Hearing Impairment
(2)
Digestive Disorders
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Down's Syndrome
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(2)
Epilepsy
(7)
Language and Speech Disorders
(5)
Learning Difficulties
(15)
Musculoskeletal Disorders
(7)
Narcotics Anonymous
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Ostomies
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Stroke
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Web Pages
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Viewing in alphabetical order
Aid for Children with Tracheostomies
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http://www.actfortrachykids.com
National self help group operating as a registered charity. intention is to complement rather than replace statutory provisions of the medical and community services, by providing the encouragement, support and practical advice to families facing after their child has had a tracheostomy. Membership details and brief information on a tracheostomy
Anorchidism Support Group
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http://freespace.virgin.net/asg.uk
Supports any person, or families of boy's, with congenital (or acquired) absence of the testes. History of the group, what they do and how to join.
Bladder Exstrophy Family Association
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http://www.bladderexstrophy.co.uk
Non profit making support network for families of children born with bladder/cloacal exstrophy and/or epispadias. Forum and events.
Climb Congenital Adrenal Hyperplasia UK Support Group
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http://www.cah.org.uk
Provides support for those with CAH, as well as their families, and raises funds for research. FAQs, information pack, publications, events, and stories.
Cushing's Syndrome Support Group (Yahoo!)
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http://uk.groups.yahoo.com/group/Cushings/
UK forum for those with 'Cushing's Syndrome' - a hormonal disorder caused by prolonged exposure to high levels of the hormone cortisol. Yahoo! registration required.
Directory of Self Help Groups
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http://www.ukselfhelp.info
Publisher of printed directory provides links to many self help and support groups.
Edinburgh Myalgic Encephalomyelitis Self Help Group
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http://www.edmesh.org.uk/
Edinburgh-based ME Self Help Group (MESH) for those with ME, as well as their families and carers. Events, meetings, postal library service, quarterly newsletter, plus forum and members-only pages.
Equilibrium
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http://www.bipolar-foundation.org
An independent, international, non-governmental organisation dedicated to improving treatment and understanding of the causes and effects of bipolar disorder ('manic-depression').
Hop Skip and Jump
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http://www.hopskipandjump.org.uk/
Bristol-based day care and supervised play for children with special needs and their families. Includes facilities - serves all of South West England.
Jonny Kennedy North East
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http://www.jonnykennedynortheast.org.uk/
Providing support for Epidermolysis Bullosa sufferers and their carers. News, events and community forum
SIBS: For family siblings of people with special needs
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http://www.sibs.org.uk
Support for brothers and sisters of those with special needs, disabilities or chronic illness. Fact sheets, workshops and conferences, plus training for professionals.
Sue Ryder Care
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http://www.suerydercare.com/
Charity to support people with disabilities and life-shortening diseases, their families, carers and friends, offing care at home or in residential centres. Information on its services and chain of shops.
Survivors Swindon
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http://www.survivorsswindon.com/
Supporting adult male survivors of child sexual abuse and adult sexual assaults. Training services also offered.
The Agoraphobia Support Network
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http://www.agoraphobia-support.co.uk
Provides information and advice for agoraphobics, as well as their friends and family. Self-help support network for members to exchange information and experiences, and gently help each other to cope.
The Mental Health Foundation
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http://www.mentalhealth.org.uk/
Charity improving the lives of those with mental health problems or learning disabilities. Research, service development and information to increase understanding.
Verity 'PCOS' Self Help Group
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http://www.verity-pcos.org.uk/
For women whose lives are affected by Polycystic Ovary Syndrome. Events diary, facts-sheets, web-links and discussion forum.
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